Nexus Heart Foundation started because navigating an LVNC diagnosis felt like falling through the cracks. It’s not just a rare heart condition — it’s confusion, fear, unanswered questions, and often feeling completely alone. We built this organization to make sure no one else has to go through that without support. Whether it’s connecting patients with the right specialist, helping cover testing costs, or simply explaining what all the medical words mean, we’re here to make sure every person gets the help they need — emotionally, financially, and medically.

We also know that awareness can change everything. Most people have never even heard of LVNC until it affects someone they love. That has to change. We’re creating educational tools, sharing stories, and working with doctors so that LVNC is recognized earlier and treated with the seriousness it deserves. Our goal is simple: make sure no one faces this condition in the dark.

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Peter Smalley, Akshaj Katragunta, Dillon Colaso
Founders