Empowering patients and specialists for a brighter future.
Supporting education and advocacy.
At Nexus Heart Foundation, we are dedicated to advancing awareness, education, and advocacy for rare cardiac conditions, with a primary focus on Left Ventricular Non-Compaction Cardiomyopathy (LVNC).
By bridging the gap between complex cardiology and community understanding, we aim to support families, patients, and educators while encouraging a culture of early detection and compassionate care.
Our mission is grounded in accessibility, evidence-based information, and the belief that no one should have to face a life-altering diagnosis without clarity or support.
Interested? Fill out our interest form.
Demystifying LVNC
Left Ventricular Noncompaction Cardiomyopathy (LVNC) is often misunderstood and overlooked. Clear, compassionate education helps patients, families, and communities make sense of the condition — what it is, how it’s diagnosed, and why early awareness matters.
Resources For Patients and Families
Traditional approaches to heart health often leave rare diseases like LVNC out of the conversation. Nexus Heart Foundation is building science-backed, emotionally intelligent tools that make heart education more inclusive, accurate, and empowering.
From Awareness to Impact
Awareness becomes powerful when it drives action. Through storytelling, expert interviews, fundraising, and outreach, Nexus Heart Foundation turns lived experience into real-world impact for those affected by LVNC.
“LVNC affects approximately 1 in 700 people, and there’s about a 20% chance of inheritance in first-degree relatives”
— (Towbin et al., 2015).
Contact
Feel free to contact us with any questions.
Email
nexusheartfoundation@gmail.com